US (United States) Code. Title 42. Chapter 118: Alzeimer's disease and related dementias research

Codificación normativa de EEUU (Estados Unidos). Legislación federal estadounidense # The Public Health and Welfare

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-CITE-

42 USC CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED

DEMENTIAS RESEARCH 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

-HEAD-

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

-MISC1-

SUBCHAPTER I - GENERAL PROVISIONS

Sec.

11201. Findings.

SUBCHAPTER II - COUNCIL ON ALZHEIMER'S DISEASE

11211, 11212. Repealed.

SUBCHAPTER III - ADVISORY PANEL ON ALZHEIMER'S DISEASE

11221. Establishment of Panel.

(a) Composition; nonvoting ex officio members.

(b) Appointment of members.

(c) Chairman.

(d) Term of office; vacancy.

(e) Quorum; establishment of subcommittees.

(f) Meetings.

(g) Executive Secretary; administrative staff and

support.

(h) Compensation; travel expenses.

(i) Abolishment of Panel; termination.

11222. Functions of Panel.

11223. Authorization of appropriations.

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND THEIR FAMILIES

11231, 11232. Repealed or Transferred.

11241 to 11243. Repealed or Transferred.

PART 1 - RESPONSIBILITIES OF NATIONAL INSTITUTE OF MENTAL HEALTH

11251. Research program and plan.

(a) Grants for research.

(b) Preparation of plan; contents; revision.

11252. Dissemination.

11253. Authorization of appropriations.

PART 2 - RESPONSIBILITIES OF AGENCY FOR HEALTHCARE RESEARCH AND

QUALITY

11261. Research program.

(a) Grants for research.

(b) Research subjects.

11262. Dissemination.

11263. Authorization of appropriations.

PART 3 - RESPONSIBILITIES OF HEALTH CARE FINANCING ADMINISTRATION

11271. Research program and plan.

(a) Grants for research.

(b) Preparation of plan; contents; revision.

(c) Consultation for preparation and revision of

plan.

11272. Dissemination.

11273. Authorization of appropriations.

11281 to 11283. Repealed or Transferred.

SUBCHAPTER V - EDUCATIONAL ACTIVITIES

11291. Providing information for personnel of Social Security

Administration.

11292. Education of public, individuals with Alzheimer's

disease and their families, and health and long-term

care providers.

(a) Training models grants.

(b) Educational grants.

(c) Award of grants.

(d) Application.

(e) Coordination.

11293. Education programs for safety and transportation

personnel.

11294. Authorization of appropriations.

-End-

-CITE-

42 USC SUBCHAPTER I - GENERAL PROVISIONS 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER I - GENERAL PROVISIONS

-HEAD-

SUBCHAPTER I - GENERAL PROVISIONS

-End-

-CITE-

42 USC Sec. 11201 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER I - GENERAL PROVISIONS

-HEAD-

Sec. 11201. Findings

-STATUTE-

The Congress finds that -

(1) best estimates indicate that between 2,000,000 and

3,000,000 Americans presently have Alzheimer's disease or related

dementias;

(2) estimates of the number of individuals afflicted with

Alzheimer's disease and related dementias are unreliable because

current diagnostic procedures lack accuracy and sensitivity and

because there is a need for epidemiological data on incidence and

prevalence of such disease and dementias;

(3) studies estimate that between one-half and two-thirds of

patients in nursing homes meet the clinical and mental status

criteria for dementia;

(4) the cost of caring for individuals with Alzheimer's disease

and related dementias is great, and conservative estimates range

between $38,000,000,000 and $42,000,000,000 per year solely for

direct costs;

(5) progress in the neurosciences and behavioral sciences has

demonstrated the interdependence and mutual reinforcement of

basic science, clinical research, and services research for

Alzheimer's disease and related dementias;

(6) programs initiated as part of the Decade of the Brain are

likely to provide significant progress in understanding the

fundamental mechanisms underlying the causes of, and treatments

for, Alzheimer's disease and related dementias;

(7) although substantial progress has been made in recent years

in identifying possible leads to the causes of Alzheimer's

disease and related dementias, and more progress can be expected

in the near future, there is little likelihood of a breakthrough

in the immediate future that would eliminate or substantially

reduce -

(A) the number of individuals with the disease and dementias;

or

(B) the difficulties of caring for the individuals;

(8) the responsibility for care of individuals with Alzheimer's

disease and related dementias falls primarily on their families,

and the care is financially and emotionally devastating;

(9) attempts to reduce the emotional and financial burden of

caring for dementia patients is impeded by a lack of knowledge

about such patients, how to care for such patients, the costs

associated with such care, the effectiveness of various modes of

care, the quality and type of care necessary at various stages of

the disease, and other appropriate services that are needed to

provide quality care;

(10) the results of the little research that has been

undertaken concerning dementia has been inadequate or the results

have not been widely disseminated;

(11) more knowledge is needed concerning -

(A) the epidemiology of, and the identification of risk

factors for, Alzheimer's disease and related dementias;

(B) the development of methods for early diagnosis,

functional assessment, and psychological evaluation of

individuals with Alzheimer's disease for the purpose of

monitoring the course of the disease and developing strategies

for improving the quality of life for such individuals;

(C) the understanding of the optimal range and

cost-effectiveness of community and institutional services for

individuals with Alzheimer's disease and related dementias and

their families, particularly with respect to the design,

delivery, staffing, and mix of such services and the

coordination of such services with other services, and with

respect to the relationship of formal to informal support

services;

(D) the understanding of optimal methods to combine formal

support services provided by health care professionals with

informal support services provided by family, friends, and

neighbors of individuals with Alzheimer's disease, and the

identification of ways family caregivers can be sustained

through interventions to reduce psychological and social

problems and physical problems induced by stress;

(E) existing data that are relevant to Alzheimer's disease

and related dementias; and

(F) the costs incurred in caring for individuals with

Alzheimer's disease and related dementias;

(12) it is imperative to provide appropriate coordination of

the efforts of the Federal Government in the provision of

services for individuals with Alzheimer's disease and related

dementias;

(13) it is important to increase the understanding of

Alzheimer's disease and related dementias by the diverse range of

personnel involved in the care of individuals with such disease

and dementias; and

(14) it is imperative that the Social Security Administration

be provided information pertaining to Alzheimer's disease and

related dementias, particularly for personnel in such

Administration involved in the establishment and updating of

criteria for determining whether an individual is under a

disability for purposes of titles II and XVI of the Social

Security Act [42 U.S.C. 401 et seq., 1381 et seq.].

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 902, Nov. 14, 1986, 100 Stat. 3802;

Pub. L. 102-507, Sec. 4, Oct. 24, 1992, 106 Stat. 3281.)

-REFTEXT-

REFERENCES IN TEXT

The Social Security Act, referred to in par. (14), is act Aug.

14, 1935, ch. 531, 49 Stat. 620, as amended. Titles II and XVI of

the Act are classified generally to subchapters II (Sec. 401 et

seq.) and XVI (Sec. 1381 et seq.), respectively, of chapter 7 of

this title. For complete classification of this Act to the Code,

see section 1305 of this title and Tables.

-MISC1-

AMENDMENTS

1992 - Pars. (4) to (14). Pub. L. 102-507 added pars. (4) to (8),

redesignated former pars. (7) to (12) as (9) to (14), respectively,

and struck out former pars. (4) to (6) which read as follows:

"(4) the care for individuals with Alzheimer's disease and

related dementias falls primarily on their families, and such care

is very often financially and emotionally devastating;

"(5) the cost of caring for individuals with Alzheimer's disease

and related dementias is great, and conservative estimates range

between $38,000,000,000 and $42,000,000,000 per year solely for

direct costs;

"(6) although substantial progress has been made in recent years

in identifying possible leads to the causes of Alzheimer's disease

and related dementias and more progress can be expected in the near

future, there is little likelihood of a breakthrough in the

foreseeable future which would eliminate or substantially reduce

the number of individuals with such disease and dementias or the

difficulties of caring for such individuals;".

SHORT TITLE OF 1992 AMENDMENT

Section 1 of Pub. L. 102-507 provided that: "This Act [enacting

section 11261 of this title, amending this section and sections

285e-5, 11211, 11212, 11221, 11223, 11251, 11253, 11263, 11292, and

11294 of this title, repealing section 11261 of this title, and

amending provisions set out as a note under this section] may be

cited as the 'Alzheimer's Disease Research, Training, and Education

Amendments of 1992'."

SHORT TITLE

Section 901 of title IX of Pub. L. 99-660, as amended by Pub. L.

102-507, Sec. 2(a), Oct. 24, 1992, 106 Stat. 3281, provided that:

"This title [enacting this chapter] may be cited as the

'Alzheimer's Disease and Related Dementias Research Act of 1992'."

-End-

-CITE-

42 USC SUBCHAPTER II - COUNCIL ON ALZHEIMER'S DISEASE 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER II - COUNCIL ON ALZHEIMER'S DISEASE

-HEAD-

SUBCHAPTER II - COUNCIL ON ALZHEIMER'S DISEASE

-End-

-CITE-

42 USC Secs. 11211, 11212 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER II - COUNCIL ON ALZHEIMER'S DISEASE

-HEAD-

Secs. 11211, 11212. Repealed. Pub. L. 105-362, title VI, Sec.

601(a)(2)(E), Nov. 10, 1998, 112 Stat. 3286

-MISC1-

Section 11211, Pub. L. 99-660, title IX, Sec. 911, Nov. 14, 1986,

100 Stat. 3804; Pub. L. 102-54, Sec. 13(q)(14)(A), June 13, 1991,

105 Stat. 282; Pub. L. 102-507, Sec. 5(2)[(a)], Oct. 24, 1992, 106

Stat. 3282; Pub. L. 103-171, Sec. 3(b)(3), Dec. 2, 1993, 107 Stat.

1991, related to establishment of Council on Alzheimer's Disease in

the Department of Health and Human Services.

Section 11212, Pub. L. 99-660, title IX, Sec. 912, Nov. 14, 1986,

100 Stat. 3804; Pub. L. 100-607, title I, Sec. 142(c)(1)(E), Nov.

4, 1988, 102 Stat. 3057; Pub. L. 102-507, Sec. 5(b), Oct. 24, 1992,

106 Stat. 3282, related to functions of Council on Alzheimer's

Disease.

-End-

-CITE-

42 USC SUBCHAPTER III - ADVISORY PANEL ON ALZHEIMER'S

DISEASE 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER III - ADVISORY PANEL ON ALZHEIMER'S DISEASE

-HEAD-

SUBCHAPTER III - ADVISORY PANEL ON ALZHEIMER'S DISEASE

-End-

-CITE-

42 USC Sec. 11221 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER III - ADVISORY PANEL ON ALZHEIMER'S DISEASE

-HEAD-

Sec. 11221. Establishment of Panel

-STATUTE-

(a) Composition; nonvoting ex officio members

There is established in the Department the Advisory Panel on

Alzheimer's Disease (hereinafter referred to as the "Panel"). The

Panel shall be composed of -

(1) 15 voting members appointed by the Director of the Office

of Technology Assessment, of which -

(A) 3 shall be individuals who are biomedical research

scientists with demonstrated achievements in biomedical

research relating to Alzheimer's disease, including at least

one individual who is a researcher at a center supported under

section 285e-2 of this title;

(B) 3 shall be individuals with demonstrated achievements in

research relevant to services for the care of individuals with

Alzheimer's disease and related dementias;

(C) 3 shall be individuals who are providers of services, or

administrators of organizations which provide services, for

individuals with Alzheimer's disease and related dementias and

their families;

(D) 3 shall be individuals who are experts in the financing

of health care services and long-term care services, including

one individual who is a representative of private health care

services insurers; and

(E) 3 shall be representatives of national voluntary

organizations which are concerned with the problems of

individuals with Alzheimer's disease and related dementias and

their families; and

(2) the Chairman of the Council, the Director of the National

Institute on Aging, the Director of the National Institute of

Mental Health, the Assistant Administrator of the Agency for

Healthcare Research and Quality, and the Assistant Secretary for

Aging, who shall be nonvoting ex officio members.

(b) Appointment of members

The Director of the Office of Technology Assessment shall appoint

members to the Panel under subsection (a)(1) of this section within

90 days after November 14, 1986.

(c) Chairman

The Secretary shall appoint a Chairman of the Panel from among

the members appointed under subsection (a)(1) of this section.

(d) Term of office; vacancy

(1)(A) Except as provided in subparagraph (B), members of the

Panel appointed under subsection (a)(1) of this section shall each

serve for a term of 3 years.

(B) Of the members appointed under subsection (a)(1) of this

section that are serving on the Panel on the day before October 24,

1992 -

(i) five shall serve for a term that expires on October 24,

1992;

(ii) five shall serve for a term that expires 1 year after

October 24, 1992; and

(iii) five shall serve for a term that expires 2 years after

October 24, 1992.

(2) A vacancy on the Panel shall be filled in the same manner as

the original appointment was made, and not later than 90 days after

the date on which the vacancy first arises. A vacancy on the Panel

shall not affect the powers of the Panel.

(e) Quorum; establishment of subcommittees

A majority of the members of the Panel appointed under subsection

(a)(1) of this section shall constitute a quorum, but a lesser

number may hold hearings. The Panel may establish such

subcommittees as the Panel considers appropriate.

(f) Meetings

The Panel shall meet at the call of the Chairman, but not less

than once per year.

(g) Executive Secretary; administrative staff and support

The Executive Secretary of the Council shall serve as Executive

Secretary of the Panel. The Secretary shall provide the Panel with

such additional administrative staff and support as may be

necessary to enable the Panel to carry out its functions.

(h) Compensation; travel expenses

Each member of the Panel appointed under subsection (a)(1) of

this section shall receive compensation at a rate at the daily

equivalent of the maximum rate specified for GS-15 of the General

Schedule under section 5332 of title 5 for each day, including

travel time, that such member is engaged in duties as a member of

the Panel. While away from their homes or regular places of

business in the performance of duties as a member of the Panel,

members of the Panel appointed under subsection (a)(1) of this

section shall be allowed travel expenses, including per diem in

lieu of subsistence, at rates authorized for employees of agencies

under section 5702 of title 5.

(i) Abolishment of Panel; termination

Notwithstanding section 14 of the Federal Advisory Committee Act

(5 U.S.C. App.) on September 30, 1996, the Panel shall be abolished

and all programs established under this subchapter shall terminate.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 921, Nov. 14, 1986, 100 Stat. 3806;

Pub. L. 102-507, Sec. 6(a), Oct. 24, 1992, 106 Stat. 3283; Pub. L.

103-171, Sec. 3(b)(3), Dec. 2, 1993, 107 Stat. 1991; Pub. L.

106-129, Sec. 2(b)(2), Dec. 6, 1999, 113 Stat. 1670.)

-REFTEXT-

REFERENCES IN TEXT

Section 14 of the Federal Advisory Committee Act, referred to in

subsec. (i), is section 14 of Pub. L. 92-463, which is set out in

the Appendix to Title 5, Government Organization and Employees.

-COD-

CODIFICATION

October 24, 1992, referred to in subsec. (d)(1)(B), was in the

original "the date of the enactment of this subsection" and "such

date", which were translated as meaning the date of enactment of

Pub. L. 102-507, which amended subsec. (d) generally, to reflect

the probable intent of Congress.

-MISC1-

AMENDMENTS

1999 - Subsec. (a)(2). Pub. L. 106-129 substituted "Agency for

Healthcare Research and Quality" for "Agency for Health Care Policy

and Research".

1993 - Subsec. (a)(2). Pub. L. 103-171, which directed the

substitution of "Assistant Secretary for Aging" for "Commissioner

on Aging" in section 921(a)(2) of the Alzheimer's Disease and

Related Dementias Services Research Act of 1986, was executed to

this section, which is section 921 of the Alzheimer's Disease and

Related Dementias Research Act of 1992, to reflect the probable

intent of Congress, and the change in the Short Title of that Act.

See section 901 of Pub. L. 99-660, as amended, set out as a Short

Title note under section 11201 of this title.

1992 - Subsec. (a)(2). Pub. L. 102-507, Sec. 6(a)(1), substituted

"the Administrator of the Agency for Health Care Policy and

Research" for "the Director of the National Center for Health

Services Research and Health Care Technology Assessment".

Subsec. (d). Pub. L. 102-507, Sec. 6(a)(2), amended subsec. (d)

generally. Prior to amendment, subsec. (d) read as follows:

"Members of the Panel shall serve for the life of the Panel. A

vacancy on the Panel shall be filled in the same manner as the

original appointment was made. A vacancy on the Panel shall not

affect its powers."

Subsec. (f). Pub. L. 102-507, Sec. 6(a)(3), substituted "once"

for "twice".

Subsec. (h). Pub. L. 102-507, Sec. 6(a)(4), substituted "at the

daily equivalent of the maximum rate specified for GS-15 of the

General Schedule under section 5332 of title 5" for "of $100 per

day".

Subsec. (i). Pub. L. 102-507, Sec. 6(a)(5), added subsec. (i).

-End-

-CITE-

42 USC Sec. 11222 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER III - ADVISORY PANEL ON ALZHEIMER'S DISEASE

-HEAD-

Sec. 11222. Functions of Panel

-STATUTE-

(a) The Panel shall assist the Secretary and the Council in the

identification of priorities and emerging issues with respect to

Alzheimer's disease and related dementias and the care of

individuals with such disease and dementias. The Panel shall advise

the Secretary and the Council with respect to the identification of

-

(1) emerging issues in, and promising areas of, biomedical

research relating to Alzheimer's disease and related dementias;

(2) emerging issues in, and promising areas of, research

relating to services for individuals with Alzheimer's disease and

related dementias and their families;

(3) emerging issues and promising initiatives in home and

community based services, and systems of such services, for

individuals with Alzheimer's disease and related dementias and

their families; and

(4) emerging issues in, and innovative financing mechanisms

for, payment for health care services and social services for

individuals with Alzheimer's disease and related dementias and

their families, particularly financing mechanisms in the private

sector.

(b) The Panel shall prepare and transmit to the Congress, the

Secretary, and the Council, and make available to the public, an

annual report. Such report shall contain such recommendations as

the Panel considers appropriate for administrative and legislative

actions to improve services for individuals with Alzheimer's

disease and related dementias and their families and to provide for

promising biomedical research relating to Alzheimer's disease and

related dementias.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 922, Nov. 14, 1986, 100 Stat.

3807.)

-MISC1-

TERMINATION OF REPORTING REQUIREMENTS

For termination, effective May 15, 2000, of provisions in subsec.

(b) of this section relating to the transmittal to Congress of an

annual report, see section 3003 of Pub. L. 104-66, as amended, set

out as a note under section 1113 of Title 31, Money and Finance,

and the last item on page 99 of House Document No. 103-7.

-End-

-CITE-

42 USC Sec. 11223 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER III - ADVISORY PANEL ON ALZHEIMER'S DISEASE

-HEAD-

Sec. 11223. Authorization of appropriations

-STATUTE-

There are authorized to be appropriated to carry out this

subchapter such sums as may be necessary for each of the fiscal

years 1992 through 1996.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 923, Nov. 14, 1986, 100 Stat. 3807;

Pub. L. 102-507, Sec. 6(b), Oct. 24, 1992, 106 Stat. 3283.)

-MISC1-

AMENDMENTS

1992 - Pub. L. 102-507 amended section generally. Prior to

amendment, section read as follows: "To carry out this subchapter,

there are authorized to be appropriated $100,000 for each of the

fiscal years 1988 through 1991."

-End-

-CITE-

42 USC SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR

INDIVIDUALS WITH ALZHEIMER'S DISEASE AND

RELATED DEMENTIAS AND THEIR FAMILIES 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

-HEAD-

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND THEIR FAMILIES

-MISC1-

AMENDMENTS

1988 - Pub. L. 100-607, title I, Sec. 142(c)(1)(B), (D), (2)(C),

Nov. 4, 1988, 102 Stat. 3057, redesignated former subchapter V as

IV and struck out heading for subchapter IV "AWARDS FOR LEADERSHIP

AND EXCELLENCE IN ALZHEIMER'S DISEASE AND RELATED DEMENTIAS",

consisting of sections 11231 and 11232, and struck out heading for

part 1 "Responsibilities of National Institute on Aging",

consisting of sections 11241 to 11243.

-SECREF-

SUBCHAPTER REFERRED TO IN OTHER SECTIONS

This subchapter is referred to in section 285e-7 of this title.

-End-

-CITE-

42 USC Sec. 11231 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

-HEAD-

Sec. 11231. Transferred

-MISC1-

Section, Pub. L. 99-660, title IX, Sec. 931, Nov. 14, 1986, 100

Stat. 3807, which provided for awards for biomedical research on

Alzheimer's disease and related dementias, was redesignated section

445B of the Public Health Service Act by Pub. L. 100-607, title I,

Sec. 142(a), Nov. 4, 1988, 102 Stat. 3057, and is classified to

section 285e-4 of this title.

-End-

-CITE-

42 USC Sec. 11232 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

-HEAD-

Sec. 11232. Repealed. Pub. L. 100-607, title I, Sec. 142(c)(1)(A),

Nov. 4, 1988, 102 Stat. 3057

-MISC1-

Section, Pub. L. 99-660, title IX, Sec. 932, Nov. 14, 1986, 100

Stat. 3808, authorized appropriations for fiscal years 1988 through

1991 to carry out program of awards for research on Alzheimer's

disease and related dementias.

-End-

-CITE-

42 USC Secs. 11241, 11242 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

-HEAD-

Secs. 11241, 11242. Transferred

-MISC1-

Section 11241, Pub. L. 99-660, title IX, Sec. 941, Nov. 14, 1986,

100 Stat. 3808, which provided for Director of National Institute

on Aging to conduct, or make grants for conduct of, research on

services for individuals with Alzheimer's disease and related

dementias and their families, was redesignated section 445C of the

Public Health Service Act by Pub. L. 100-607, title I, Sec. 142(a),

Nov. 4, 1988, 102 Stat. 3057, and is classified to section 285e-5

of this title.

Section 11242, Pub. L. 99-660, title IX, Sec. 942, Nov. 14, 1986,

100 Stat. 3809, which provided for Director to disseminate results

of such research to professional entities and the public, was

redesignated section 445D of the Public Health Service Act by Pub.

L. 100-607, title I, Sec. 142(a), Nov. 4, 1988, 102 Stat. 3057, and

is classified to section 285e-6 of this title.

-End-

-CITE-

42 USC Sec. 11243 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

-HEAD-

Sec. 11243. Repealed. Pub. L. 100-607, title I, Sec. 142(c)(2)(A),

Nov. 4, 1988, 102 Stat. 3057

-MISC1-

Section, Pub. L. 99-660, title IX, Sec. 943, Nov. 14, 1986, 100

Stat. 3809, authorized appropriations for fiscal years 1988 through

1991 to carry out programs of National Institute on Aging in

research on services for individuals with Alzheimer's disease and

related dementias and their families.

-End-

-CITE-

42 USC Part 1 - Responsibilities of National Institute of

Mental Health 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 1 - Responsibilities of National Institute of Mental Health

-HEAD-

PART 1 - RESPONSIBILITIES OF NATIONAL INSTITUTE OF MENTAL HEALTH

-MISC1-

AMENDMENTS

1988 - Pub. L. 100-607, title I, Sec. 142(c)(2)(C), (D), Nov. 4,

1988, 102 Stat. 3057, redesignated part 2 as 1 and struck out

former part 1 heading "Responsibilities of National Institute on

Aging".

-End-

-CITE-

42 USC Sec. 11251 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 1 - Responsibilities of National Institute of Mental Health

-HEAD-

Sec. 11251. Research program and plan

-STATUTE-

(a) Grants for research

The Director of the National Institute of Mental Health shall

conduct, or make grants for the conduct of, research relevant to

appropriate services and specialized care for individuals with

Alzheimer's disease and related dementias and their families.

(b) Preparation of plan; contents; revision

The Director of the National Institute of Mental Health shall -

(1) ensure that the research conducted under subsection (a) of

this section includes research concerning -

(A) mental health services and treatment modalities relevant

to the mental, behavioral, and psychological problems

associated with Alzheimer's disease and related dementias;

(B) the most effective methods for providing comprehensive

multidimensional assessments to obtain information about the

current functioning of, and needs for the care of, individuals

with Alzheimer's disease and related dementias;

(C) the optimal range, types, and cost-effectiveness of

services and specialized care for individuals with Alzheimer's

disease and related dementias and for their families, in

community and residential settings (including home care, day

care, and respite care), and in institutional settings,

particularly with respect to -

(i) the design of the services and care;

(ii) appropriate staffing for the provision of the services

and care;

(iii) the timing of the services and care during the

progression of the disease or dementias; and

(iv) the appropriate mix and coordination of the services

and specialized care;

(D) the efficacy of various special care units in the United

States for individuals with Alzheimer's disease, including an

assessment of the costs incurred in operating such units, the

evaluation of best practices for the development of appropriate

standards to be used by such units, and the measurement of

patient outcomes in such units;

(E) methods to combine formal support services provided by

health care professionals for individuals with Alzheimer's

disease and related dementias with informal support services

provided for such individuals by their families, friends, and

neighbors, including services such as day care services,

respite care services, home care services, nursing home

services, and other residential services and care, and an

evaluation of the services actually used for such individuals

and the sources of payment for such services;

(F) methods to sustain family members who provide care for

individuals with Alzheimer's disease and related dementias

through interventions to reduce psychological and social

problems and physical problems induced by stress; and

(G) improved methods to deliver services for individuals with

Alzheimer's disease and related dementias and their families,

including services such as outreach services, comprehensive

assessment and care management services, outpatient treatment

services, home care services, respite care services, adult day

care services, partial hospitalization services, nursing home

services, and other residential services and care; and

(2) ensure that the research is coordinated with, and uses, to

the maximum extent feasible, resources of, other Federal programs

relating to Alzheimer's disease and dementia, including centers

supported under section 285e-2 of this title, centers supported

by the National Institute of Mental Health on the psychopathology

of the elderly, relevant activities of the Administration on

Aging, other programs and centers involved in research on

Alzheimer's disease and related dementias supported by the

Department, and other programs relating to Alzheimer's disease

and related dementias which are planned or conducted by Federal

agencies other than the Department, State or local agencies,

community organizations, or private foundations.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 931, formerly Sec. 944, Nov. 14,

1986, 100 Stat. 3809; renumbered Sec. 931, Pub. L. 100-607, title

I, Sec. 142(c)(2)(B), Nov. 4, 1988, 102 Stat. 3057; Pub. L.

102-507, Sec. 7(a)(1), (2), Oct. 24, 1992, 106 Stat. 3284.)

-MISC1-

PRIOR PROVISIONS

A prior section 931 of Pub. L. 99-660, which was classified to

section 11231 of this title, was redesignated section 445B of the

Public Health Service Act by section 142(a) of Pub. L. 100-607, and

is classified to section 285e-4 of this title.

AMENDMENTS

1992 - Subsec. (a). Pub. L. 102-507, Sec. 7(a)(1)(B), inserted

"and specialized care" after "services".

Subsec. (b). Pub. L. 102-507, Sec. 7(a)(2), designated par. (1)

as entire subsec. and redesignated former par. (1)(A) as par. (1),

former par. (1)(A)(i) to (vii) as par. (1)(A) to (G), respectively,

former par. (1)(A)(iii)(I) to (IV) as par. (1)(C)(i) to (iv),

respectively, and former par. (1)(B) as par. (2).

Subsec. (b)(1). Pub. L. 102-507, Sec. 7(a)(1)(C)(i), substituted

"The Director of the National Institute of Mental Health shall" for

"Within 6 months after November 14, 1986, the Director of the

National Institute of Mental Health shall prepare and transmit to

the Chairman of the Council a plan for the research to be conducted

under subsection (a) of this section. The plan shall" in

introductory provisions.

Subsec. (b)(1)(A). Pub. L. 102-507, Sec. 7(a)(1)(C)(ii)(I),

substituted "ensure that the research conducted under subsection

(a) of this section includes" for "provide for" in introductory

provisions.

Subsec. (b)(1)(A)(iii). Pub. L. 102-507, Sec. 7(a)(1)(C)(ii)(II),

added cl. (iii) and struck out former cl. (iii) which read as

follows: "the optimal range and cost-effectiveness of community and

institutional services for individuals with Alzheimer's disease and

related dementias and their families, particularly with respect to

the design of such services, appropriate staffing for the provision

of such services, the timing of such services during the

progression of such disease or dementias, and the appropriate mix

and coordination of such services;".

Subsec. (b)(1)(A)(iv). Pub. L. 102-507, Sec. 7(a)(1)(C)(ii)(III),

inserted "the evaluation of best practices for the development of"

before "appropriate".

Subsec. (b)(1)(A)(v), (vii). Pub. L. 102-507, Sec.

7(a)(1)(C)(ii)(IV), substituted "nursing home services, and other

residential services and care" for "and nursing home services".

Subsec. (b)(1)(B). Pub. L. 102-507, Sec. 7(a)(1)(C)(iii),

substituted "the research" for "research carried out under the

plan".

Subsec. (b)(2). Pub. L. 102-507, Sec. 7(a)(1)(A), struck out par.

(2) which read as follows: "Within one year after transmitting the

plan required under paragraph (1), and annually thereafter, the

Director of the National Institute of Mental Health shall prepare

and transmit to the Chairman of the Council such revisions of such

plan as the Director considers appropriate."

Subsec. (c). Pub. L. 102-507, Sec. 7(a)(1)(A), struck out subsec.

(c) which read as follows: "In preparing and revising the plan

required by subsection (b) of this section, the Director of the

National Institute of Mental Health shall consult with the Chairman

of the Council and the heads of agencies within the Department."

-End-

-CITE-

42 USC Sec. 11252 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 1 - Responsibilities of National Institute of Mental Health

-HEAD-

Sec. 11252. Dissemination

-STATUTE-

The Director of the National Institute of Mental Health shall

disseminate the results of research conducted under this part to

appropriate professional entities and to the public.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 932, formerly Sec. 945, Nov. 14,

1986, 100 Stat. 3810; renumbered Sec. 932, Pub. L. 100-607, title

I, Sec. 142(c)(2)(B), Nov. 4, 1988, 102 Stat. 3057.)

-MISC1-

PRIOR PROVISIONS

A prior section 932 of Pub. L. 99-660 was classified to section

11232 of this title prior to repeal by section 142(c)(1)(A) of Pub.

L. 100-607.

-End-

-CITE-

42 USC Sec. 11253 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 1 - Responsibilities of National Institute of Mental Health

-HEAD-

Sec. 11253. Authorization of appropriations

-STATUTE-

There are authorized to be appropriated to carry out this part

such sums as may be necessary for each of the fiscal years 1992

through 1996.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 933, formerly Sec. 946, Nov. 14,

1986, 100 Stat. 3810; renumbered Sec. 933, Pub. L. 100-607, title

I, Sec. 142(c)(2)(B), Nov. 4, 1988, 102 Stat. 3057; Pub. L.

102-507, Sec. 7(a)(3), Oct. 24, 1992, 106 Stat. 3284.)

-MISC1-

AMENDMENTS

1992 - Pub. L. 102-507 amended section generally. Prior to

amendment, section read as follows: "To carry out this part, there

are authorized to be appropriated $2,000,000 for each of fiscal

years 1988 through 1991."

-End-

-CITE-

42 USC Part 2 - Responsibilities of Agency for Healthcare

Research and Quality 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 2 - Responsibilities of Agency for Healthcare Research and

Quality

-HEAD-

PART 2 - RESPONSIBILITIES OF AGENCY FOR HEALTHCARE RESEARCH AND

QUALITY

-MISC1-

AMENDMENTS

1999 - Pub. L. 106-129, Sec. 2(b)(2), Dec. 6, 1999, 113 Stat.

1670 substituted "Agency for Healthcare Research and Quality" for

"Agency for Health Care Policy and Research" in part heading.

1992 - Pub. L. 102-507, Sec. 7(b)(1)(A), Oct. 24, 1992, 106 Stat.

3285, substituted "Agency for Health Care Policy and Research" for

"National Center for Health Services Research and Health Care

Technology Assessment" in part heading.

1988 - Pub. L. 100-607, title I, Sec. 142(c)(2)(D), Nov. 4, 1988,

102 Stat. 3057, redesignated part 3 as 2. Former part 2

redesignated 1.

-End-

-CITE-

42 USC Sec. 11261 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 2 - Responsibilities of Agency for Healthcare Research and

Quality

-HEAD-

Sec. 11261. Research program

-STATUTE-

(a) Grants for research

The Director of the Agency for Healthcare Research and Quality

shall conduct, or make grants for the conduct of, research relevant

to appropriate services for individuals with Alzheimer's disease

and related dementias and for their families.

(b) Research subjects

The Director of the Agency for Healthcare Research and Quality

shall ensure that research conducted under subsection (a) of this

section shall include research -

(1) concerning improving the organization, delivery, and

financing of services for individuals with Alzheimer's disease

and related dementias and for their families, including research

on -

(A) the design, staffing, and operation of special care units

for the individuals in institutional settings, as well as

individuals in institutional settings,(!1) as well as

individuals in home care, day care, and respite care; and

(B) the exploration and enhancement of services such as home

care, day care, and respite care, that provide alternatives to

institutional care;

(2) concerning the costs incurred by individuals with

Alzheimer's disease and related dementias and by their families

in obtaining services, particularly services that are essential

to the individuals and that are not generally required by other

patients under long-term care programs;

(3) concerning the costs, cost-effectiveness, and effectiveness

of various interventions to provide services for individuals with

Alzheimer's disease and related dementias and for their families;

(4) conducted in consultation with the Director of the National

Institute on Aging and the Commissioner of the Administration on

Aging, concerning the role of physicians in caring for persons

with Alzheimer's disease and related dementias and for their

families, including the role of a physician in connecting such

persons with appropriate health care and supportive services,

including those supported through State and area agencies on

aging designated under section 3025(a)(1) and (2)(A) of this

title; and

(5) conducted in consultation with the Director of the National

Institute on Aging and the Commissioner of the Administration on

Aging, concerning legal and ethical issues, including issues

associated with special care units, facing individuals with

Alzheimer's disease and related dementias and facing their

families.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 934, as added Pub. L. 102-507, Sec.

7(b)(1)(B), Oct. 24, 1992, 106 Stat. 3285; amended Pub. L. 106-129,

Sec. 2(b)(2), Dec. 6, 1999, 113 Stat. 1670.)

-MISC1-

PRIOR PROVISIONS

A prior section 11261, Pub. L. 99-660, title IX, Sec. 934,

formerly Sec. 947, Nov. 14, 1986, 100 Stat. 3811; renumbered Sec.

934, Pub. L. 100-607, title I, Sec. 142(c)(2)(B), Nov. 4, 1988, 102

Stat. 3057; Pub. L. 102-54, Sec. 13(q)(14)(B), June 13, 1991, 105

Stat. 282, related to research relevant to appropriate services for

individuals with Alzheimer's disease and related dementias, prior

to repeal by Pub. L. 102-507, Sec. 7(b)(1)(B).

AMENDMENTS

1999 - Subsecs. (a), (b). Pub. L. 106-129 substituted "Director

of the Agency for Healthcare Research and Quality" for

"Administrator of the Agency for Health Care Policy and Research".

-FOOTNOTE-

(!1) So in original. The words "as well as individuals in

institutional settings," probably should not appear.

-End-

-CITE-

42 USC Sec. 11262 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 2 - Responsibilities of Agency for Healthcare Research and

Quality

-HEAD-

Sec. 11262. Dissemination

-STATUTE-

The Director of the National Center for Health Services Research

and Health Care Technology Assessment shall disseminate the results

of research conducted under this part to appropriate professional

entities and to the public.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 935, formerly Sec. 948, Nov. 14,

1986, 100 Stat. 3812; renumbered Sec. 935, Pub. L. 100-607, title

I, Sec. 142(c)(2)(B), Nov. 4, 1988, 102 Stat. 3057.)

-End-

-CITE-

42 USC Sec. 11263 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 2 - Responsibilities of Agency for Healthcare Research and

Quality

-HEAD-

Sec. 11263. Authorization of appropriations

-STATUTE-

There are authorized to be appropriated to carry out this part

such sums as may be necessary for each of the fiscal years 1992

through 1996.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 936, formerly Sec. 949, Nov. 14,

1986, 100 Stat. 3812; renumbered Sec. 936, Pub. L. 100-607, title

I, Sec. 142(c)(2)(B), Nov. 4, 1988, 102 Stat. 3057; Pub. L.

102-507, Sec. 7(b)(2), Oct. 24, 1992, 106 Stat. 3286.)

-MISC1-

AMENDMENTS

1992 - Pub. L. 102-507 amended section generally. Prior to

amendment, section read as follows: "To carry out this part, there

are authorized to be appropriated $2,000,000 for each of fiscal

years 1988 through 1991."

-End-

-CITE-

42 USC Part 3 - Responsibilities of Health Care Financing

Administration 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 3 - Responsibilities of Health Care Financing Administration

-HEAD-

PART 3 - RESPONSIBILITIES OF HEALTH CARE FINANCING ADMINISTRATION

-MISC1-

AMENDMENTS

1988 - Pub. L. 100-607, title I, Sec. 142(c)(2)(D), Nov. 4, 1988,

102 Stat. 3057, redesignated part 4 as 3. Former part 3

redesignated 2.

-End-

-CITE-

42 USC Sec. 11271 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 3 - Responsibilities of Health Care Financing Administration

-HEAD-

Sec. 11271. Research program and plan

-STATUTE-

(a) Grants for research

The Administrator of the National Health Care Financing

Administration shall conduct, or make grants for the conduct of,

research relevant to appropriate services for individuals with

Alzheimer's disease and related dementias and their families.

(b) Preparation of plan; contents; revision

(1) Within 6 months after November 14, 1986, the Administrator of

the Health Care Financing Administration shall prepare and transmit

to the Chairman of the Council a plan for research to be conducted

under (a) (!1) of this section. The plan shall -

(A) provide for a determination of the types of services

required by individuals with Alzheimer's disease and related

dementias and their families to allow such individuals to remain

living at home or in a community-based setting;

(B) provide for a determination of the costs of providing

needed services to individuals with Alzheimer's disease and

related dementias and their families, including the expenditures

for institutional, home, and community-based services and the

source of payment for such expenditures;

(C) provide for an assessment of the adequacy of benefits

provided through the Medicare and Medicaid programs and through

private health insurance for needed services for individuals with

Alzheimer's disease and related dementias and their families; and

(D) provide for a determination of the costs to the Medicare

and Medicaid programs and to private health insurers (if

available) of providing covered benefits to individuals with

Alzheimer's disease and related dementias and their families.

(2) Within one year after transmitting the plan required under

paragraph (1), and annually thereafter, the Administrator of the

Health Care Financing Administration shall prepare and transmit to

the Chairman of the Council such revisions of such plan as the

Administrator considers appropriate.

(c) Consultation for preparation and revision of plan

In preparing and revising the plan required by subsection (b) of

this section, the Administrator of the Health Care Financing

Administration shall consult with the Chairman of the Council and

the heads of agencies within the Department.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 937, formerly Sec. 949A, Nov. 14,

1986, 100 Stat. 3812; renumbered Sec. 937, Pub. L. 100-607, title

I, Sec. 142(c)(2)(B), Nov. 4, 1988, 102 Stat. 3057.)

-FOOTNOTE-

(!1) So in original. Probably should be preceded by "subsection".

-End-

-CITE-

42 USC Sec. 11272 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 3 - Responsibilities of Health Care Financing Administration

-HEAD-

Sec. 11272. Dissemination

-STATUTE-

The Administrator of the Health Care Financing Administration

shall disseminate the results of research conducted under this part

to appropriate professional entities and to the public.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 938, formerly Sec. 949B, Nov. 14,

1986, 100 Stat. 3812; renumbered Sec. 938, Pub. L. 100-607, title

I, Sec. 142(c)(2)(B), Nov. 4, 1988, 102 Stat. 3057.)

-End-

-CITE-

42 USC Sec. 11273 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 3 - Responsibilities of Health Care Financing Administration

-HEAD-

Sec. 11273. Authorization of appropriations

-STATUTE-

To carry out this part, there are authorized to be appropriated

$2,000,000 for each of fiscal years 1988 through 1991.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 939, formerly Sec. 949C, Nov. 14,

1986, 100 Stat. 3813; renumbered Sec. 939, Pub. L. 100-607, title

I, Sec. 142(c)(2)(B), Nov. 4, 1988, 102 Stat. 3057.)

-End-

-CITE-

42 USC Secs. 11281, 11282 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 3 - Responsibilities of Health Care Financing Administration

-HEAD-

Secs. 11281, 11282. Transferred

-MISC1-

Section 11281, Pub. L. 99-660, title IX, Sec. 951, Nov. 14, 1986,

100 Stat. 3813, which provided for establishment of Clearinghouse

on Alzheimer's Disease, was renumbered section 445E of the Public

Health Service Act by Pub. L. 100-607, title I, Sec. 142(a), Nov.

4, 1988, 102 Stat. 3057, and is classified to section 285e-7 of

this title.

Section 11282, Pub. L. 99-660, title IX, Sec. 952, Nov. 14, 1986,

100 Stat. 3813, which provided for dissemination project to be

conducted by national organization representing individuals with

Alzheimer's disease and related dementias, was renumbered section

445F of the Public Health Service Act by Pub. L. 100-607, title I,

Sec. 142(a), Nov. 4, 1988, 102 Stat. 3057, and is classified to

section 285e-8 of this title.

-End-

-CITE-

42 USC Sec. 11283 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS AND

THEIR FAMILIES

Part 3 - Responsibilities of Health Care Financing Administration

-HEAD-

Sec. 11283. Repealed. Pub. L. 100-607, title I, Sec. 142(c)(1)(A),

Nov. 4, 1988, 102 Stat. 3057

-MISC1-

Section, Pub. L. 99-660, title IX, Sec. 953, Nov. 14, 1986, 100

Stat. 3814, authorized appropriations for fiscal years 1988 through

1991 to carry out program of dissemination of information on

Alzheimer's disease.

-End-

-CITE-

42 USC SUBCHAPTER V - EDUCATIONAL ACTIVITIES 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER V - EDUCATIONAL ACTIVITIES

-HEAD-

SUBCHAPTER V - EDUCATIONAL ACTIVITIES

-MISC1-

AMENDMENTS

1988 - Pub. L. 100-607, title I, Sec. 142(c)(1)(C), (D), Nov. 4,

1988, 102 Stat. 3057, redesignated subchapter VII as V, struck out

heading for subchapter VI "DISSEMINATION", consisting of sections

11281 to 11283 of this title, and redesignated former subchapter V

as IV.

-End-

-CITE-

42 USC Sec. 11291 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER V - EDUCATIONAL ACTIVITIES

-HEAD-

Sec. 11291. Providing information for personnel of Social Security

Administration

-STATUTE-

(a) The Secretary shall develop a mechanism to ensure the prompt

provision of the most current information concerning Alzheimer's

disease and related dementias to the Commissioner of Social

Security, particularly information which will increase the

understanding of personnel of the Social Security Administration

concerning such disease and dementias.

(b) The Commissioner of Social Security shall ensure that

information received under subsection (a) of this section is

provided to personnel of the Social Security Administration,

particularly personnel involved in the process of determining, for

purposes of titles II and XVI of the Social Security Act [42 U.S.C.

401 et seq., 1381 et seq.], whether an individual is under a

disability.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 961, Nov. 14, 1986, 100 Stat.

3814.)

-REFTEXT-

REFERENCES IN TEXT

The Social Security Act, referred to in subsec. (b), is act Aug.

14, 1935, ch. 531, 49 Stat. 620, as amended. Titles II and XVI of

the Social Security Act are classified generally to subchapters II

(Sec. 401 et seq.) and XVI (Sec. 1381 et seq.), respectively, of

chapter 7 of this title. For complete classification of this Act to

the Code, see section 1305 of this title and Tables.

-SECREF-

SECTION REFERRED TO IN OTHER SECTIONS

This section is referred to in section 11294 of this title.

-End-

-CITE-

42 USC Sec. 11292 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER V - EDUCATIONAL ACTIVITIES

-HEAD-

Sec. 11292. Education of public, individuals with Alzheimer's

disease and their families, and health and long-term care

providers

-STATUTE-

(a) Training models grants

(1) Grants

The Director of the National Institute on Aging may award

grants to eligible entities to assist the entities in developing

and evaluating model training programs -

(A) for -

(i) health care professionals, including mental health

professionals;

(ii) health care paraprofessionals;

(iii) personnel, including information and referral, case

management, and in-home services personnel (including

personnel receiving support under the Older Americans Act of

1965 (42 U.S.C. 3001 et seq.)), providing supportive services

to the elderly and the families of the elderly;

(iv) family caregivers providing care and treatment for

individuals with Alzheimer's disease and related disorders;

and

(v) personnel of local organizations (including community

groups, business and labor groups, and religious,

educational, and charitable organizations) that have

traditionally not been involved in planning and developing

long-term care services; and

(B) with attention to such variables as -

(i) curricula development for training and continuing

education programs;

(ii) care setting; and

(iii) intervention technique.

(2) Eligible entity

To be eligible to receive grants under this subsection, an

entity shall be -

(A) an educational institution providing training and

education in medicine, psychology, nursing, social work,

gerontology, or health care administration;

(B) an educational institution providing preparatory training

and education of personnel for nursing homes, hospitals, and

home or community settings; or

(C) an Alzheimer's Disease Research Center described in

section 285e-2(a) of this title.

(b) Educational grants

The Director of the National Institute on Aging is authorized to

make grants to public and nonprofit private entities to assist such

entities in establishing programs, for educating health care

providers and the families of individuals with Alzheimer's disease

or related disorders, regarding -

(1) caring for individuals with such diseases or disorders; and

(2) the availability in the community of public and private

sources of assistance, including financial assistance, for caring

for such individuals.

(c) Award of grants

In awarding grants under this section, the Director of the

National Institute on Aging shall -

(1) award the grants on the basis of merit;

(2) award the grants in a manner that will ensure access to the

programs described in subsections (a) and (b) of this section by

rural, minority, and underserved populations throughout the

country; and

(3) ensure that the grants are distributed among the principal

geographic regions of the United States.

(d) Application

To be eligible to receive a grant under this section, an entity

shall submit an application to the Director of the National

Institute on Aging at such time, in such manner, and containing or

accompanied by such information, as the Director may reasonably

require, including, at a minimum, an assurance that the entity will

coordinate programs provided under this section with the State

agency designated under section 305(a)(1) of the Older Americans

Act of 1965 [42 U.S.C. 3025(a)(1)], in the State in which the

entity will provide such programs.

(e) Coordination

The Director of the National Institute on Aging shall coordinate

the award of grants under this section with the heads of other

appropriate agencies, including the Commissioner of the

Administration on Aging.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 962, Nov. 14, 1986, 100 Stat. 3814;

Pub. L. 102-507, Sec. 8(a), Oct. 24, 1992, 106 Stat. 3286.)

-REFTEXT-

REFERENCES IN TEXT

The Older Americans Act of 1965, referred to in subsec.

(a)(1)(A)(iii), is Pub. L. 89-73, July 14, 1965, 79 Stat. 218, as

amended, which is classified generally to chapter 35 (Sec. 3001 et

seq.) of this title. For complete classification of this Act to the

Code, see Short Title note set out under section 3001 of this title

and Tables.

-MISC1-

AMENDMENTS

1992 - Pub. L. 102-507 amended section generally. Prior to

amendment, section read as follows: "The Director of the National

Institute on Aging, through centers supported under section 285e-2

of this title, professional associations, and continuing education

programs, shall conduct education and information dissemination

activities concerning the special problems of individuals with

Alzheimer's disease and their families. Such activities shall be

designed to enhance the understanding of such problems by

individuals who provide care for individuals with Alzheimer's

disease and related dementias, including physicians, nurses,

psychologists, social workers, occupational therapists, nursing

home administrators, nurses, and health care aides."

-SECREF-

SECTION REFERRED TO IN OTHER SECTIONS

This section is referred to in section 11294 of this title.

-End-

-CITE-

42 USC Sec. 11293 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER V - EDUCATIONAL ACTIVITIES

-HEAD-

Sec. 11293. Education programs for safety and transportation

personnel

-STATUTE-

The Director of the National Institute on Aging, through centers

supported under section 285e-2 of this title, training academies,

and continuing education programs, shall conduct education and

information dissemination activities concerning Alzheimer's disease

and related dementias for personnel involved in ensuring the public

safety and providing public transportation. Such activities shall

be designed to enhance the ability of such personnel to respond

appropriately to individuals with Alzheimer's disease and related

dementias whom such personnel may encounter in the course of their

employment.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 963, Nov. 14, 1986, 100 Stat.

3815.)

-SECREF-

SECTION REFERRED TO IN OTHER SECTIONS

This section is referred to in section 11294 of this title.

-End-

-CITE-

42 USC Sec. 11294 01/06/03

-EXPCITE-

TITLE 42 - THE PUBLIC HEALTH AND WELFARE

CHAPTER 118 - ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH

SUBCHAPTER V - EDUCATIONAL ACTIVITIES

-HEAD-

Sec. 11294. Authorization of appropriations

-STATUTE-

(a) To carry out sections 11291 and 11293 of this title, there

are authorized to be appropriated $1,000,000 for each of the fiscal

years 1988 through 1991.

(b) There are authorized to be appropriated such sums as may be

necessary for each of the fiscal years 1992 through 1996, to carry

out section 11292 of this title.

-SOURCE-

(Pub. L. 99-660, title IX, Sec. 964, Nov. 14, 1986, 100 Stat. 3815;

Pub. L. 102-507, Sec. 8(b), Oct. 24, 1992, 106 Stat. 3287.)

-MISC1-

AMENDMENTS

1992 - Pub. L. 102-507 designated existing provisions as subsec.

(a), substituted "sections 11291 and 11293 of this title" for "this

subchapter", and added subsec. (b).

-End-